Patient programme

Prague, 11th of October, 2021

Dear members of patients’ organisations,


We are very pleased to inform you about our activities related to the patient program during the 4th Global Myositis Conference (GCOM), which will take place in Prague, Czech Republic on June 6th-9th, 2022, in hybrid format.

The international team is currently developing the program for patients that will run in parallel with the scientific conference program.

At the beginning of the conference, we intend to include an online meeting.

In addition, the main program will include two workshops for patients, focusing on:

1)      “Physiotherapy and Occupational Therapy interventions”

2)      “Questions & Answers” panel discussion with clinicians and scientists.

You are also very welcome to participate in the  ”Patient Poster Session”. For information on the structure of this activity, see the conference website.

We also plan to develop a conference booklet for patients, including photos, short biographies and contact information, in order to improve networking between patients across the borders. According to the new European privacy law, we are obliged to ask for the permission to share this information. Please let us know if you feel there may be any objections to this activity.

Please let us know by replying to this e-mail address: before 30th of January, 2022.

Information on registration and other necessary notifications can be found on the website. When registering by the 28th of February 2022, a conference fee of 50,- Euro is more advantageous instead of  80,- Euro for later payment.


Thank you very much in advance for your reply.


Looking forward to seeing you in Prague in June, 2022.


For working Team:

Olga Drápalová, Chair of the Czech Myositis Working Group, Czech League Against Rheumatism,

Hana Šmucrová, Occupational therapist Institute of Rheumatology, Prague,

Ingrid de Groot, Chair of the Dutch Myositis Working Group, Dutch Patient Association for Neuromuscular Diseases,

Silke Schlüter, Chair of the German Myositis Diagnosis Group, German Society for Neuromuscular Diseases,